The word metastatic first came into my vernacular June 18, 2013. Well actually, I was told at that moment I would be lucky if it wasn't at least stage two. A month later I found out after scans it was stage 4 from the very beginning.
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I was diagnosed in 2012. I started having problems and due to my family history, I decided to have a double mastectomy.
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I had a ruptured Appendix and laid in bed on a cruise ship in pain for 5 nights. I got off the ship and went into the ER and was diagnosed with an Appendicitis. I had surgery and was ready to go home when the surgeon told me the thing they thought was an abscess was a Signet Ring Adenocarcinoma.
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I was transferred to UCC in Chicago on November 13, 2018, and have seen ENT so far. My next appointment will be the December 1 for the gyno team. This is ridiculous and never-ending.
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I’m a 12 year survivor, but I’m scheduled to go to UT Southwestern this month because of burning pain in my other breast and a 9mm nodule in my right lung and a lump next to my spine!
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It's About Time we make this high visibility with funding going to research and human testing.
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