In December 2014, I had a bilateral mastectomy for DCIS (Stage 0). In April of 2016 (16 months later), the cancer had spread to my bones. After genetic testing and being positive for BRCA2, my ovaries and tubes were removed and tested positive for cancer cells.


I was originally diagnosed in February of 2011 at age 40: stage 3b IDC, bilateral mastectomy. Chemo, radiation, two reconstructions. Ah, it was over. Then, I went for a check up in May and had to go for a biopsy. Yup, stage 4 metastatic breast cancer. My world crumbled.


Thirty percent of women with stage 0, 1, or 2 breast cancer will go on to develop stage 4 metastatic cancer, where it leaves the breast and goes elsewhere: liver, brain, lungs, bone, etc. These women depend on research for longevity of life.


At the end of the day, I’ve had to relinquish my Type A tendencies to control the trajectory of life and take each day much more slowly. To be present now in the lives of my boys. To cherish my husband and family.


Because of my stage IV, metastatic disease I'll be on some type of therapy for the rest of my life. In the meantime, I am going to continue to advocate for more research to find a cure for this dreadful disease.


I really didn't want to know what metastatic meant, so I didn't really look it up. I was just trying to do everything in steps.


Two days before Christmas in 2016, I was diagnosed with metatstatic breast cancer which had metastisized to the liver and bone. The goal is to have quality of life for my remaining years until a cure is found. We need a cure for this horrific disease! I don't want to see any more women get diagnosed.


This is not my story. This is my cancer. My story is my faith, my marriage, my family and my heritage of love and faith to those that I've met along my journey. Please remember me, not my cancer story.


My mother fought hard for 9.5 years. Something has to be done to be able to save loved ones. I miss her dearly and not a day goes by that I don't think about her.


I was diagnosed in 2010. I am on a hormonal pill and get a bone shot every 3 months.


I have learned that life is truly a gift and that I cannot dictate where it will take me but it is up to me seize every opportunity, to derive pleasure in the smallest of things, and never take good health for granted.


It has been easy to feel like I am one big burden to society. I will never be “cured” and I will always be in treatment. Treating me is therefore very expensive. But, I am more than a burden; I'm also education.


Being a Metastatic Thriver has changed my whole outlook on life. I value every minute of each day. I listen to my body. I'm kinder to myself. When I feel good, I get after it doing the activities I love.


After all the testing, it came back as stage IV breast cancer that spread to my bones. I'm living every day to the fullest and leaving it all in God's hands.


I was diagnosed metastatic de novo at the age of 41, with cancer of the breast, bones, liver, and brain. I did not know that breast cancer could still be incurable but boy, am I learning a lot about this now!!


We need more research so that [my sister] can be cured and live a long life. She needs to be here for her children. She deserves to see them grow up and have families of there own. She is stronger than she knows.


What I'm passionate about is getting RESEARCH dollars for MBC, the only form of breast cancer that kills.


Five years ago this month, I was diagnosed with Metastatic Breast Cancer. This is not a journey I would have willingly chosen but one that I will use to empower and move me forward.


At 35-years-old, I was told I had metastatic breast cancer. A year has gone by now and my focus continues to be the same as it was that day I was slapped in the face: to live and to educate.


None of us are immune to the pain one can experience in a lifetime, whether it be cancer, divorce, or loss of a job. Any number of bad things can happen, and the only element we can control is how we choose to respond to the adversity.


My goal is to be around for my husband and daughter but reality wants to tell me otherwise. I'm not buying it! We have an amazingly fun life and I want to continue on that road!! Live, laugh and love - that's our family motto and I'm sticking to it!


I say 'Yes' to new experiences and opportunities because I don't know how much longer I will be able to do them!


I want to see MBC have a voice. Not many people understand it. They think I look great and I'm not sick, so they wonder, "How do I have cancer?"


I was first diagnosed with BC in 2014. I had four rounds of chemo and 17 radiations. My 27/29 remained elevated but was declared no longer needing treatment other than Femara daily. In December 2016, I fell on ice. After uncontrolled pain for a month, I was sent for x-rays and a CT. They found […]


We need more money spent on research to help people living with stage IV metatastatic breast cancer NOW!


My family and I live for the good news and support each other with any bit of not-so-good news.


Research, research, research. We can not stop until a cure is found or it can be labeled a chronic disease.


Enough with the awareness campaigns! We survivors need much more money and research on Stage IV! We need early trials conducted with actual Stage IV cancer cells!


I want to see more research for cures and prevention, more public awareness to the fact that breast cancer is serious stuff and often returns in a very life-threatening MBC state. I encounter far too many others in a similar situation, and it is sad and frightening.


I use every breath I have to enjoy my life, my husband and my kids and to spread awareness about MBC.


My hope is that it may open the eyes of both breast cancer "survivors", physicians, and drug companies to the needs of women like myself.


It isn’t the life I would have picked for myself, but it’s my life and I’m going to devote every last breath to changing the world for MBC patients and their families.

Deb Ragosta

After my initial inclination to feel sorry for myself and give up any hope of being able to live long enough to do things many of us take for granted ­ like dance at my daughter’s wedding, I decided that in order to help myself, I needed to help others.


It's about moments. It's all about Bonus Time, and I'm carping the hell out of each diem.


I have had stage 4 breast cancer since 2012, but I have lived with breast cancer for almost 21 years.

Heidi Gutierrez

None of us are guaranteed tomorrow, so why not soak up every moment we can with the ones we love?


I am determined to live my life and enjoy my handsome, hilarious husband and my 3 beautifully wild children. I laugh loudly, smile often and look absolutely fabulous while doing it.


The hushed, dying voices of those now stage 4, ruining the party, knowing the reality, not everyone is saved.


MBC needs more support, definitely more funding and public awareness is all needed to end the 40,000 deaths each year.

I live my life each day with purpose, enjoying everything life has to offer.

Kelly Shanahan

Now that my time is limited, I appreciate it more. I may have an appointment, but when the sun is sparkling on the lake, I have time to pull over to take a picture or just soak in the view.


I may get a break now and then when cancer is under control, but it is unlikely as cancer is a cunning devil and always seems to figure out a way to get around the latest treatment after 6 weeks or so of each drug.


It was a long journey for me before I was able to make peace with my diagnosis and find the strength and courage to live again.


Those of us facing MBC should be the VERY HEART of the pinkness. We should be the deepest, most brilliant pink of all and feel that the pink movement is working to save our life.


Let's continue to lift each other up, let the world hear our voices and know that we matter, our families matter and we want to be here with them.


I didn't know....when I assured my children in 2009 that breast cancer 'Is Not The Death Sentence It Once Was', that it was a lie.

Judit Saunders

Time is no longer viewed as "next month," "next year," "when I retire," but rather minute by minute, hour by hour."


It's about time to ICE the cure for metastatic breast cancer once and for all.

Krista Curley

It's about time metastatic had it!!! Education, funding and awareness.


We need our hope renewed. I need to stop having to say goodbye to so many sweet metasisters.


I would like to see more education regarding the difference between funding for MBC and non-metastatic breast cancer.

Joyce Judy

I'd like MBC patients to have access to drugs in early testing if they so choose.

I thought I would one day be able to say, "I beat cancer."


Sometimes, I still cannot believe that I even had mets and it was in my lungs. So I just do what was, and still is, making me happy


Our hope is that research with immunotherapy will be successful, and the knowledge learned from Fay's journey may help others.

Constance Baker

I am currently living with metastatic breast cancer, but more importantly, I am a Mom fighting for more time with my son & loving husband.

Anna Renault

I am currently living with metastatic breast cancer, but more importantly, I am a Mom fighting for more time with my son & loving husband.

Janet Oney

To all the ones who have died with this horrible disease: I pray you haven't died in vain, that money and research will find a cure. I pray your daughters and sons and grandchildren will not have to face this in their lifetime and that a cure will be found.


The best way to live with this disease is to try to do the things that you're passionate about while you can, the things that keep that fire inside you lit.

I started Twisted Pink in 2014 - I wanted to do something for the men and women who were being left behind the pink ribbon, which has become a symbol for awareness & a cure!

Carol Chaoui

I think "Pinktober" is difficult for patients living with Stage IV breast cancer. We feel left out of the movement and our voices are important.

Sharon Jensen

My humble opinion is the "Pink Ribbon" campaign to make women aware of breast cancer and the annual mammograms has reached its goal and their funding and donations should be turned over to MBC for research.

Janice L.

I will continue to help with this fight! Not only because of my sister, but for her daughter, and for families, friends, & even strangers who are all connected because of this disease.


I feel a continued drive to fund metastatic research will hopefully change the outcome of my friends from dying from complications of breast cancer.


I'm sure there are thousands of women like myself, that have to do whatever it takes to support their families because there's no support system otherwise. We are in an unending fight for our lives.


I watched my maternal grandmother fight cancer for 20 years as she raised me. I figured that at some point I, too, would end up fighting that fight, but I never realized how soon it would be or that I would be fighting metastatic cancer.


It's About Time MBC patients have viable, long-term treatment options that allow us to live WELL with MBC and watch our children grow.


Research is what may possibly save me from dying of this disease, not awareness.

Vickie Young Wen

I am desperate to live. I do not want to die. And so I press on, one day at a time. There's so much I do not understand and that gives a sense of desperation as well.

Maura Bivens

So much of Hunter’s childhood I have spent sad, nostalgic, and even frantic at times. In one way I have treasured every minute with him and tried to squeeze out every drop life has to offer, but in another way there have been wasted moments in sadness.


The true battle is not letting the cancer change who you are and not letting it terrorize you by occupying your every thought.


We don't cross the pink ribbon cancer finish line. Our experience with cancer ends with our death.


Time is something that goes by mostly unnoticed until you get a terminal diagnosis.


I would encourage everyone to try to enjoy every single day. Life is so precious, so do not waste too much time feeling sorry for yourself. There really are so many things one can find to be thankful for.

Stage IV breast cancer is chronic, progressive and ultimately fatal. It's about time we change that!


I was diagnosed with Metastatic Breast Cancer on New Year’s Day 2016. I felt like the universe was playing a joke on me. As a Registered Dietitian, I counseled people on making healthy food and life-style choices. How ironic that practicing what I preached failed to protect me from stage 4 cancer.

I mean, I thought breast cancer meant in my breast. I was quickly educated on how little I actually knew about Breast Cancer.

What I have learned is that my cancer brings out the very best in people. People want to connect and be in communion with me.

There are so many of us working so hard to be "thrivers". We have had a crash course in living in the present.

Time is shortened now, by doctor appointments, scans, fatigue and sometimes sadness, but I still have all the same things to accomplish and more.


Even with a rigorous schedule of treatments, scans, medications, and various doctors’ appointments, I have been able to maintain my lifestyle as a single, New York City gal...I have been able to find a new kind of normal.


The most important thing I've learned from this experience with cancer is that it has brought my awareness of my own mortality to the front. I've learned to live in the here-and-now.

Tanya Anderson

Love your family and friends, let them help when they want, do what you can when you can. Cry and mourn. Then get up, laugh and enjoy what you do have. Someday, they will conquer this. Maybe my son and daughter will see a major breakthrough in their lifetimes.


I never thought I'd want two painful shots for another 30 years, but the alternative is bad. At least right now it is, unless there's more research that produces a cure or less toxic treatments.


We get more research and public awareness. I want to thrive not die.


It's time for our society to start taking this disease seriously.


It's About Time we had more research and funding and finally a cure for all breast cancer.


It's About Time we hold Breast Cancer Orgs accountable for putting out false information.

marie demian

It's About Time we had more funding for people with metastatic breast cancer.


It's about time we stop focusing on treatments that make metastatic breast cancer "bearable."

Jacqueline "Sandy" Sheppard (by Valerie Smith, mother)

It's about time for all to realize that approximately 20-30% of all breast cancer cases will...

Kristi Stone

It's about time we have more research funding for deadly metastatic breast cancer!

Joyce Judy

It's About Time we make this high visibility with funding going to research and human testing.


Please support more research focused specifically on metastatic cancer. If we don't understand how to help people whose cancer has metastasized we won't be able to understand how to prevent it.


It's About Time that the research and funding is tailored towards those individuals living with MBC (Metastatic Breast Cancer).


It’s About Time we include people with metastatic cancer in our support networks for everyday living. People with metastatic breast cancer are living. We can’t write them off. We need to make sure they have the complete support resources they need for living everyday to the fullest, for the good days and the bad days. […]


It's About Time METASTATIC ≠ DEAD.


It's About Time that we adequately funded metastatic research, across organs of origin. I'd like to see my youngest child start kindergarten, and the only thing that can make that dream a reality is metastatic research.