I don’t think that people realize what living with stage IV breast cancer is really like. For me, I have been permanently disabled since my diagnosis. I had just turned 41 years old. I had treatment and then everyone seemed to assume that I was fine.
I am living with a terminal illness. On a “normal” day I usually sleep to at least noon, if not later. Some days I just stay in bed. I have been on and off treatments since 2003. I have neuropathy in my legs and feet and bone pain from my metastasis so I take pain medications 24/7. I have cognitive and memory issues which frustrate me and makes it hard to have conversations with people.
I have always been a person that just accepts things as they come and that is how I have to deal with living with a disease there is no cure for. Did I mention that I am a male? Yes, only 1% of men get diagnosed with breast cancer. Does that 1% matter if it is you or a loved one? We need more money spent on research to help people living with stage IV metatastatic breast cancer NOW!